2013
was a difficult year. As some of you already know, in the
spring I was diagnosed with a low grade lymphoma, a type of blood cancer
affecting the lymph system. Since I wasn't experiencing any of the symptoms of the disease I
was told the best approach was to wait until they manifested themselves before
beginning treatment. The oncologist said it could be years before symptoms
occurred, so that was good news, if there is any good news to be had in a
cancer diagnosis.
A few weeks later I developed a pain
that shot down the inside of my leg and I thought I had pulled a groin muscle. It
got to the point where the discomfort was keeping me awake at night so I went
in for more tests. A CAT scan indicated I had a lesion on my pelvis and I was
sent for a consultation with an orthopedic
specialist. A biopsy indicated the lesion
was cancerous and I was told it was eating away at my pelvis and this was the likely
the source of my pain. It turned out to be an aggressive lymphoma (different
from the low grade lymphoma I was diagnosed with weeks earlier). My oncologist
started me right away on chemotherapy. The worst part for me was that the
cancerous lesion ate a hole in the bone before it was discovered. Since it was near
my hip, they didn’t want me putting any weight on it for fear it could break. So
as a precaution they had me on crutches or in a wheelchair for the six months I
did chemo. That was a big pain in the butt. I spent the
spring and summer going through six, three-week cycles of chemotherapy. It was
quite an ordeal and something I hope I never have to do again. The most recent
PET scan indicated that any remaining lymphoma cells were undetectable and
below the sensitivity level of the instruments they used to measure them; that’s
the best outcome you can have! Now I have to go in for four weeks of daily radiation
treatments to kill any residual cancer cells that the chemo might have missed. Unfortunately,
I still have the low grade lymphoma so I’m not totally out of the woods yet and
there is a 25% chance that the aggressive lymphoma could return in three to
five years; that also means there is a 75% chance that it won’t. Believing from
the onset that the lymphoma had likely compromised the integrity of my hip, I
was told that I should anticipate hip replacement surgery when chemotherapy was
over.
In early October I had an encouraging meeting with my orthopedic surgeon who said the post-chemo x-rays and my last CAT scan indicated that the weight bearing portion of my hip joint was not compromised by the cancer as they originally suspected. He thought it would be safe to forego the hip replacement and recommended I slowly start adding weight-bearing to that leg again and start walking; which I have been doing for a few weeks now. I've certainly developed a new appreciation for what people confined to a wheelchair have to deal with on a daily basis.
My lack of mobility made it difficult
to get down to my studio to work on my portraits of contemporary Native beadworkers so that
project was put on hold. By late summer I was wasting a lot of time sitting on
the living room couch staring out the window or watching TV so I decided to do
something productive. I got a drawing pad out and started doing some pen and
ink sketches. The technique involves juxtaposing and overlapping thousands of
tiny dots with a fine-tipped, felt tip pen, to create the modeling
or shading you see on the pieces.
Art is often born of human
experience, both positive and negative. These sketches were unlike any of my representational
portraits of Native people that are well planned out and can take hundreds of
hours to execute; these are very graphic and produced almost spontaneously in
comparison. The earliest ones were done in a single sitting of just a few
hours. When I began to sketch I had no idea what would come out – I would just
start to draw and the result was perhaps a reflection of my psychological state
at the time. All the sketches tend to be faces in some form; some take on an alien, bird or animal-like appearance.
Don’t ask me what they mean as I haven’t figured it out yet. They were just my
way of dealing with the cancer and bringing a face to it. Perhaps
they represent different faces of my lymphoma and are part of the healing
process in my daily battle with cancer. My first reaction to them was how
bizarre, curious, weird and fantastic they were. As I progressed, the designs
became more complex and I worked on them from six to eight hours a day, usually
getting one completed in two to three days. They started as a way to pass
the time but eventually developed into something more. I was determined to not
let the cancer prevent me from doing something I loved.
The
“faces” can be a little spooky, even to me, but cancer is a scary disease. There
were times when I wondered if all this chemo was worth it. It did kill the
cancer but it also killed part of my spirit. I've come to see the sketches as a mechanism
that is not only giving a face to my cancer but is helping me cope with it on a
psychological level. It’s also helping to restore my spirit. Each represents a
dialogue between my subconscious mind and my healing body. Each
expresses a different visual voice; an expressive image. Perhaps
these sketches are the vehicle through which the psychological component of my
cancer will be culled from my mind – the chemo culling it from my body. To me,
they appear to be
"drawing" out the many faces of my cancer.
The pieces are illustrated below in
the order they were created so you can see how the faces evolved from the alien-like
images into mask-like forms. When I got to the twenty-third image I thought I
was done with them, incorporated the text "the end" into the design, and put my sketch pad and pens away. But after a
couple of weeks, they were calling me back. Maybe the images have a spirit of
their own that is guiding me to produce more of them for my healing to be
complete, so number 24 represents the beginning after "the end." I've haven’t commented on any of the images in the captions because you’re probably better off interpreting them for yourself.
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| #26 |
